tag:blogger.com,1999:blog-7992357902279761822.post4662352810665350304..comments2013-10-03T19:00:36.589-07:00Comments on Along for the Ride: Natural History StudyColleenhttp://www.blogger.com/profile/10799081447726885516noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7992357902279761822.post-48411076636064392162011-11-09T15:14:19.633-08:002011-11-09T15:14:19.633-08:00So glad that you got to fire off all the questions...So glad that you got to fire off all the questions. Even when they don't have answers isn't it nice to at least feel like if there was somebody with the answer, it would have been them, so it isn't like it is still out there to find out. Emmy looks great in the pics! Such an amazing little girl :-)Colleenhttps://www.blogger.com/profile/03696326541180487827noreply@blogger.comtag:blogger.com,1999:blog-7992357902279761822.post-23487006218910590042011-11-08T18:42:42.352-08:002011-11-08T18:42:42.352-08:00It is really wonderful that you are participating ...It is really wonderful that you are participating in the study. I am hoping and praying for treatments and cures for Rett's. It must have felt good to be able to talk with people who are experts in this disease. Emmy is truly one-of-a-kind. I smile when I think about her sweet face. Thanks for sharing your blog<br />Love<br />AnnieAnnie Leppinhttps://www.blogger.com/profile/14114357119548903508noreply@blogger.comtag:blogger.com,1999:blog-7992357902279761822.post-49083755415278088162011-11-08T17:15:13.828-08:002011-11-08T17:15:13.828-08:00i too have those same feelings when we are at our ...i too have those same feelings when we are at our study appt. "is this FOR REAL?" "Im spending my saturday HERE having Avery weighed and measured and watched?" but then I go out to the waiting area and hug my new friends and we laugh and joke and talk about our rett stuff and get understanding looks and nods. and we feel totally in the right place. and I LOVE knowing that the info they are gathering is moving us toward a cure!Ericahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.comtag:blogger.com,1999:blog-7992357902279761822.post-60613403351976802932011-11-08T11:31:06.208-08:002011-11-08T11:31:06.208-08:00So glad you were able to get loads of answers, Col...So glad you were able to get loads of answers, Colleen! At least that's a small relief perhaps.<br /><br />I had a dream about Emmy this week -- she was smiling, and so, so happy.<br /><br />Hugs for November!Chantalnoreply@blogger.com