5

On August 21st Miss Emelia turned 5 and it goes down in the books as the best birthday yet!  Ava had her first friend party when she turned 5 so we decided that Emmy should follow suit.  She agreed a pool party would be perfect so we got busy planning.  She helped with all the details and was truly all smiles whenever we talked about party day.  Girl was pumped!

The whole day could not have been any more wonderful.  I mean, how can it go wrong when you've got the absolute best preschool pals, a pool, slide, fountains and a huge sandbox?  Not to mention pizza, chocolate chip cookies and ice cream.

It just so happened that Emmy had a very slight fever the day of her party.  She was acting totally fine so we decided to go ahead with the plan.  I know this is very strange but when Emmy isn't feeling 100%, her Rett symptoms lessen.  She breathes better and has much better control over her body.  We know there is a connection between the immune system and Rett and we know other parents have reported the same thing.  As a result of better body control she was able to do this... (pay no attention to the annoying, overly excited mom voice in the background)



 

 

...by far my favorite moment of the day.  I love that she's digging. with her friends. completely unassisted.  I feel like I got a glimpse of what her life could be like if she had just a smidge more control.