Yep, get answers! Instead of walking into a doctors office while they're googling Rett Syndrome we got to talk to doctors who work at a Rett Clinic at Baylor College in Houston. They see girls with Rett Syndrome all day, every day. Any weird problem we threw their way, they pretty much had an answer. I fired off questions while John had the pleasant task of keeping Em happy for hours and hours in these tiny little exam rooms. There were no invasive tests, just some measuring and lots of questions to answer. There were times when I was sitting there that I felt like the whole situation was so surreal.
Really, is this happening? Am I really sitting here asking questions about seizures and life expectancy? Will I wake up anytime soon?
Nope. This is as real as it gets.
So although it was not the first place I would've picked to spend a beautiful fall Saturday afternoon, it was where we needed to be.
|Hello, my name is Emmy. I would rather walk the hallways and press elevator buttons than listen to a bunch of neurologist answer questions at a panel discussion. Dig my crooked part?|