There have been many times in the last two years that I've wished I didn't have to explain the horrifics of Rett Syndrome in front of Emmy. I try and watch what I say in front of her but it is kind of hard to explain in a sunshiney way. Let's face it. It's not a sunshiney disease. Thankfully,
Girl Power 2 Cure came up with an answer. This organization creates 'Purple Cards' families can hand out to give people info without having to launch into a big explanation. I started her bio page, sent a picture and changed up the wording on the card a bit, and they sent me these beautiful cards...
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